Surviving Medical Care: A Mastocytosis Patient's Journey in the Medical System
| Author | : | |
| Rating | : | 4.15 (722 Votes) |
| Asin | : | 1491751169 |
| Format Type | : | paperback |
| Number of Pages | : | 98 Pages |
| Publish Date | : | 2016-05-24 |
| Language | : | English |
DESCRIPTION:
Well written page-turner recommended for any chronically ill patient Shana Forney A well-written book that shows what it's like to live with Masto and to try to find medical treatment. It was heartbreaking in places but always hopeful, and I laughed out loud at the names she gave the doctors. Many of these instances have been faced by me and other patients, but it was nice to see them captured in writing because it makes it all seem more manageable. It is also validating to see someone else has experienced the same things I have and been through the ringer with doctors and ERs. The. "Informative and definitely relatable." according to jamn2dblues. This wonderfully informative book clearly lays out the truth of a diagnosed of Mastocytosis.I found it relatable and accurate to the many years of seeing doctors, misdiagnosed, test after test, and a ton of medications that you have to fight for approval from the insurance company, or inappropriate medicine scripts that have no use for dx.. "Trials of a rare disease patient." according to D. Lynn Boddy. Informative book about all the good and bad a patient w/ a rare disease goes through. Unfortunately, she had to go through it too many years. Author has a positive attitude.
About the Author Ruth Brown, born in 1945, has been a lifelong patient with mastocytosis, a rare hematological disease. . Her experiences inspired this memoir, a journey for the correct diagnosis and appropriate treatment
As a result of her condition, she experienced many incredible encounters with medical professionals and institutions. In Surviving Medical Care, she writes of the nearly fifty-five years she spent seeking medical attention for a series of seemingly unrelated and sporadic symptoms. While Surviving Medical Care narrates Brown's personal story, it has much to say about how Americans need to be involved in their medical care and advocate for improvements in the medical system.. While living a relatively normal life as a wife, mother, and software developer, she coped with the challenges of her affliction. In this memoir, Brown shares how her extensive experience as a patient exemplifies pitfalls of medical care in the United States. Her problems arose not from a lack of excellent medical coverage but from a variety of other problems: physicians with poor communication skills; unnecessary, costly and invasive testing; medical personnel not trained to think logically or creatively; tight schedules in physicians' offices; overcrowded and understaffed emergency rooms; and indifferent physicians. Despite numerous obs
Her experiences inspired this memoir, a journey for the correct diagnosis and appropriate treatment. . Ruth Brown, born in 1945, has been a lifelong patient with mastocytosis, a rare hematological disease